Free Download

Patient Advisory Board for Chronic Rhinosinusitis – A EUFOREA initiative

Volume: 57 - Issue: 5

First page: 331 - Last page: 335

B. Pugin - L. Deneyer - C. Bachert - I. Alobid - J. Bousquet - G. De Carlo - W.J. Fokkens - S. Gane - C. Hopkins - C. Holzmeister - C. Langdon - E.S. Lourijsen - V.J. Lund - G. Marien - M. Mavris - J. Mullol - C. Pereira-Perez - P.V. Tomazic - O. Vanderveken - P.W. Hellings - S.F. Seys

Despite the high prevalence of chronic rhinosinusitis (CRS) and its impact on patients’ quality of life, no European patient organization that advocates for patients with CRS currently exists. To fill this gap and give a voice to CRS patients, EUFOREA has created a patient advisory board, whose goal is to better understand the real-life needs of patients, to raise awareness at political level and to involve patients in the development of novel integrated solutions to accelerate access to accurate diagnosis and treatments. This report summarizes the key discussion points from the kick-off meeting of the board on the 8th June 2018 and provides an outline of the key objectives for the future.

B. Pugin - L. Deneyer - C. Bachert - I. Alobid - J. Bousquet - G. De Carlo - W.J. Fokkens - S. Gane - C. Hopkins - C. Holzmeister - C. Langdon - E.S. Lourijsen - V.J. Lund - G. Marien - M. Mavris - J. Mullol - C. Pereira-Perez - P.V. Tomazic - O. Vanderveken - P.W. Hellings - S.F. Seys - Patient Advisory Board for Chronic Rhinosinusitis – A EUFOREA initiative

Rhinology 57-5: 331-335, 2019

To see the issue content and the abstract you do not have to login

Please login to download the full articles

If you do not have a subscription to Rhinology please consider taking one.

Click here to become a member of the European Rhinologic Society and a subscriber to the journal `RHINOLOGY`, from 2022. Subscription including membership fee: Euro 135.-